I love this app. It is its own social media platform, not a group. Just knowing that everyone is there to listen and encourage one another is a beautiful thing. Notifications aren't lost in a list that's 90% unrelated to things you post, you don't have the stress of accidentally posting something private in a public group, and it is very easy to navigate.
I have an profile with this app, and I had to request a code to register, and the code would not come up via SMS and call. So then I created another account and the same thing happened. I was unable to send an email or message via the app because it told me to register. I really enjoy this support group. I want my first profile and the 2nd one deleted. I need assistance in solving this problem.
haven't logged in for a while but just tried today and it must have been updated. can no longer log in.. asks me to put in phone number to receive SMS code.. never receive code.. press the call me button.. does nothing..
Absolutely amazing. See what other people are dealing with. Get answers for what you're dealing with. The best part is there is an amazing development team that will spend time reviewing, understanding, and helping you with questions and concerns!!! Having access to this kind of information is great whether you're just getting started, don't know much, had MS for years, and a "seasoned pro". Step in and learn, help others, and find support and answers!!
I installed this app to be able to read articles that appear in my Facebook feed. Even with the app installed the links to the articles don't work and I was immediately inundated with notifications of posts that said something like "good morning ". It would be nice to have a central source of info about MS, but this is a waste of time.
Great to be able to relate to others on what I'm exercising and also great feedback from others n doctor's on related issues. I spend lots of time reading and bonding with others in different groups. I definitely don't feel alone anymore in having to deal with this disease and feel learning from others and their experiences is also helpful.
Disorganized Unsafe This app is definitely disorganized. It enabled predators to see and talk to woman who are just trying to feel safe in a space which should protect people. I had a negative communication with a member and I can't block this person? Their "Sophie" AI gives great advice you can Google. This app is scam my as it shared my information. I couldn't get technical support to answer my question for anything and finding profile settings impossible. TERRIBLE.
I signed up and was just getting started to look at things. I went to open the app and it had logged me off, I tried numerous times to get a verification code to be able to sign in but it never sent I Uninstalled it which is too bad because it looked decent for information
Navigation is terrible. Glitchy. Instead of adding groups you have to delete groups in order to cutomize to yourself. And when trying to delete the account you have to email instead of click to delete, but the email gives you an error code. Honestly, more trounle than it's worth for someone who was diagnosed decades ago.
Instead of stars, I wanted to say "incomplete." Was enjoying the forums and wanted to ask some questions, but the app will no longer open for me. Tried reloading the app and still nada. Just "Oops, looks like something went wrong."
DO NOT ADD YOUR PHONE NUMBER. I was hesitant to verify with my phone number, but there was a message promising not to share it. Not even 30 minutes after, I get a scam text about a phony Netflix account. Do not put real info into this app. *just tried on a different phone with a different number and the same thing happened so lol*
I'm miffed! Just got started with the group, and saw an article on MS and cold weather..so I clicked on it. Told me everything..but about the effects of the cold weather!! I'm depending on the different articles that you publish, so please..when you say that the following is about MS and...say.. Big Foot..make sure that the hairy beast is included in the article😊 On the light side, grindle 2
I just downloaded the app. But when trying to sign up, it has a place to put a nickname. But no matter what I try to put, it says "error. Must contain Latin letters or numbers"... And I cannot continue with the set up because it will not go any further until I put that in. But I have no idea how to. So would like to actually be able to set up and use the app. I'm sure I could give it a better rating if I could make it thru the set up. It's very frustrating. Some help would be great.
I can't believe how great this app is! I mean really it's incredible. You can ask a doctor a question that's been worrying you, and the doctor will get back to you within a few minutes. My own neurologist doesn't even do that!! Lots of forums to discuss things with other warriors! And it's all for free. Well done BelongMS, long may you continue.
Great app, with tons of resources. One addition it could use. For those of us in Limboland. A catagory and chat option. Many of us out here have symptoms leasions and even spinal tap markers but our doctors won't give a positive diagnosis. I've talked to many MS patients who said it took anywhere from months to years for a pos diag even tho and in my case Drs are treating the symptoms but our levels or amount of leasions aren't high enough for their liking.
This app is a lifesaver to either ask questions or read posts and responses from other MS'ers. I like that it's a little more private than posting in even a private FB group. I wish the records portion was as detailed as the myMSAA app so I could just use one.
It is a great app. I see there are others that feel the same as I do. We with MS go thru so much and other people will nod their heads and agree but they don't always know what we are going thru. Having an invisible illness makes me feel like I'm from another planet some days. I'm thankful for this app because it gives me a better understanding and I'm not alone on this MS journey.
Love the app however as of late have not been able to get past the loading screen despite uninstalling and reinstalling the app several times. Hope I can get it working again. Place is great for support.
Supportive groups & non judgemental. Personal experiences & expressions & acces to current information, diet and exercise. A great resource to help folks suffering with MS and those who want to understand the challenges of their loved ones. I recommend this App.
This app has sent me 12 notifications this morning saying "You've been hugged." Why?? I'm deleting the app, at least for now because it seems like it's been hacked or something. Definitely needs to be checked within your system.