One of the doctors I needed to add to complete my profile was listed with the wrong address and it won't let me move on without entering him into my profile. Still not sure it's the right guy. I got an email telling me that someone responded to one of my comments in a chat. It doesn't have a link to take me to the conversation and/or comment so I have no way of finding the conversation or the comment. it would be great if I could use the app on my laptop but there is no way to do that.
I find the app helpful, but also frustrating. I'll get an email, but when I click on the link, I am told to go to the app. If I go directly to the app, then the article the email refers to is hard to find. So I have to open my email on my phone [I do not usually do email on my phone]. Often, I cannot find the article. Can we make things work on my computers as well as the phone app? I have found the webinars helpful.
I had a very rare cancer in a rare place with rare mutations: Adenoid Cystic Carcinoma of the distal trachea. MYB-NFIB and NOTCH1 identified. This app seems to be geared more toward horses, not zebras. It does not really feel like a good fit. How can I delete all of my data?
Thiis app is very useful for anyone who are affected by breast cancer (just diagnosed, in treatment, in remission, advanced/metastasis). Treatment plans are clearly explained and up to date. you can favorite certain information and enter questions for your doctor's. Clinical trials that are relevant to you can be found easily as well. Instead of carrying printed documents, this is very convenient and safer as you can store all the info in your phone and lock it. This app jus launched last Fri.
It's strange I use the app and the app offers me to continue to read in the app (what I already installed)!
Use the app every day to track meds...until update a few days ago and now it doesn't work. I keep giving correct information to update my profile, but it never enters the app. I would love for it to work again.
I prefer to read all the messages on my computer. I do not like to read anything on my phone as the fonts are very small. It will be very nice and appreciate if I can continue to read all the patient's remarks on my computer in my email. Thanks.
If you have breast cancer, you should be using this app. Treatments, trials, health news and tips all in one spot. It allows you to move beyond being just a patient and more into the partner mode with your doctor with your treatment plan. I can't recommend this app enough.
I think this app is a fantastic idea. I am looking forward to there being resources for more types of cancer than breast and lung. The app is harder to use if you are seeking info about, for example, my brain cancer.
This app is awesome! it walk you through the process, gives you relavent articles to your case and shows you clincal trials close to your address. this is a one-stop shop for breast cancer patients and it helps patient who have no clue what to do next.
My diagnosis is polycythemia vera (a myeloplasticplastic neoplasm). I recognize that it's a rare blood cancer but it's NOT ALL (acute lymphoblastic leukemia) as the app keeps calling it. If you don't have support or a knowledge base for PV then say so and stop wasting my time. And several times I was asked the same profile questions.
No value to me. I've learned nothing, other than from the moment I installed the app it began pushing marketing notifications. So worthless!!
So far, so good.. my treatment plan is going according to the doctor diagnosis. Bit grim and gloomy but helps me to see what and whom my true support truly is. Bone marrow stimulants are excruciating. Doctors and staff are precise, very respectful, sympathetic, and support groups with others, like myself, help me cope with my immortality.
This is an app that is more than just talk. They are action. I used the chat and the advice I got was invaluable. They make you really feel cared about
Can not upload your own medical records. Doesn't answer questions though email.
This is a very helpful app.
All breast cancer is NOT carcinoma. This doesn't address the diagnosis. It doesn't account for adoptees. It does seem hungry to get your medical records. Not worth the time it takes to dowload. Uninstalling!
If you are diagnosed with breast cancer...this is your app! Track your side effects,get clinical trials near you, manage meds all in one place!!
Apparent data-mining operation that does not provide anything significant that is promised. Sorry I gave them any personal info.
The app only let me put in lymphoma as my cancer. There are many types and this app gave me info about many different types but none were about my type. Horrible. Waste of time.